Podcast series: Navigating AL amyloidosis
Tune in to this series for the latest on AL amyloidosis. Host Dr Shaji Kumar (Mayo Clinic, Rochester, Minnesota, USA) talks to fellow specialists and a person with AL amyloidosis about topics ranging from disease impact to multidisciplinary care.
Episode 1: Beyond the diagnosis – Patient voices and holistic care
Linda Perez had 9 years of misdiagnoses before a persistent cardiologist finally realised she had a single underlying disease, by which time she was very ill indeed. She tells Dr Kumar about the huge physical and emotional impact of the disease, the support that patients need from their healthcare team versus what is available, and how different specialists can work together with the patient to successfully manage AL amyloidosis.
Coming soon…
Check back here for future episodes covering:
- All about AL amyloidosis – presentation and clinical consequences
- Challenges and tools in diagnosis
- The latest treatment options and best-practice care
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